“Yeah, I know what you mean, Mommy. I really like her stories, but most of the time I feel like she is inside four walls of brick and I can walk around and around them but only she has the key to the secret doorway.”

Lucy -(Daughter of Bobbi Sheahan, author of “What I Wish I Knew About Raising a Child with Autism”) upon her mother explaining to her that it sometimes feels as if she has to reach around the autism to get to her younger daughter

6 responses »

  1. Natalie Manke says:

    I enjoy this blog very much and wonder if anyone knows of any support groups in the city of Chicago. Thanks.

  2. I was reading some autism magazine about sibling research when my oldest son walked by and I looked up to ask him, “How would you describe living with an autistic sister?” At that moment, below our feet in the basement, our non-verbal, often violent daughter roared and squealed. My son said, “It’s like living with a wookie in the basement.”

    Of course her nickname became Wookie. And because of her extreme reactions (of which I still bear scars) to the word “No.”, we had to pick which battles to fight. The rest of the time, the family motto was, “Let the wookie win.”

    If you haven’t watched the first Star Wars filmed, episode IV, I suppose you will have no idea what that means. If you are of a certain age and have seen the movie, you have just wet your pants laughing.

  3. I just showed it to her, and she gasped and said, “I’ve been QUOTED?”
    (Reminded me of Billy Crystal in Monsters, Inc., LOL)
    Bobbi

    • FlappinessIs says:

      Well, it’s very quotable! And, as a former English teacher, I’m quite impressed with her use of analogy. What an insightful mind. I know you are proud of her. 🙂

  4. Jim Reeve says:

    That’s an excellent analogy for what it’s like. Hopefully one day, we’ll all be able to find the secret entrance.

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